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Saturday, October 21, 2017

Last week, I had to go to Columbia for a conference with my class.

It was the first time I had spent any significant amount of time there since everything happened. I had done quick trips to get my stuff, move apartments, and I think I had one quick visit with friends.

While we weren't on campus (or even anywhere near it) we did end up driving around areas that were familiar to me.

I am going to try to put into words what I felt, but unless you can directly relate, you may not understand all the emotions I had.

I felt like two different pieces of my life were crashing together. The old me was blending in with the new me, and it was weird.

It was weird, but it was also kind of sad. I have all these vivid, tangible memories of my time in Columbia, so driving around and seeing places I used to go and talking about roads I used to drive on all the time was sad. We drove by places my friends and I would go have dinner or go shopping, and I got so nostalgic for those memories that it hurt. It was like I almost couldn't believe that my old life existed until I was smack dab in the middle of it.

Things have changed there. My friends all graduated and are no longer there, and there are things I now don't recognize. It made me sad for all that I missed. I feel like that part of my old life was never really closed up. I was stolen away, but never got any closure there. It was hard to be in familiar areas, I am not going to lie. All of the places seemed so familiar that it felt like if I closed my eyes hard enough, I could be right back there. I recognized all the places, but I did not recognize my life.

On the other hand, I was there with my class and we did have a good time. I am thankful for the opportunity to create new memories in an old place. I think I will forever mourn what I lost, though. I miss what I had and I miss what I could have had there.

This got me thinking, too, about how when people ask me why I left USC or when I tell people I had cancer. They often reply with something like "I am so sorry" and I know that is coming with love and true sorrow (because hello...cancer at 20), but I am never quite sure how to reply. I sometimes say something like "I mean it is okay" (as if I need to make them feel better for what happened to me!),  but it is NOT. It is NOT okay that I had cancer. It is not okay that this happened to me. I am still not okay with it.

I don't know what the answer is there, because I don't know what else you say or what else I should say. I don't want people to stop asking though. PLEASE ask me. I fear that people think I don't like talking about it so they don't ask questions, but I am happy to talk about it. I am not ashamed or scared to talk about it. I am proud of my story and want to share.

I do struggle with talking about it, as I believe I have mentioned before. I do not want to only talk about cancer or talk about it too much. I do not want to make people uncomfortable (but also I spent a year being much more uncomfortable than you will be hearing me talk about it). I know most people cannot relate to cancer, but this is just a part of my life. Like people talk about graduations, vacations, even minor illnesses, I can talk about cancer. It is not super common, but that is all the more reason I want to talk about it!

I feel like my old life and my new life are so separate that I guess it is weird for me to have them come together.  It is still weird to me that all of the people I have met since I had cancer never knew me before and that those that have known me awhile knew the old me too. I  blogged here before about molding all these versions of myself into one semi-functioning person, and I guess I am still trying to do just that.




And because you need to laugh, always, no matter what, writing this post made me think of this quote from my favorite show, Modern Family. Although my circumstances are a bit different (and less fun) than living a double live, I wish I thrived on it a little bit more than I do, too :).
 “I wish I were one of those people who thrives on the danger of leading a double life. You know, Bruce Wayne, Peter Parker, Hannah Montana.”- Phil Dunphy



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I do not want to take away from the top of this post, but also want to thank you for all your continued love and support. I may not be in the trenches of cancer anymore, but I am still affected by it everyday, so I truly appreciate all the love and support you still send to me!


Timing

Saturday, September 23, 2017

During cancer treatment, and for some time after, you live minute by minute. Not even day by day because things can change so quickly. One minute you may be fine and the next minute you develop a fever which puts you on hospital watch. It is so incredibly draining to live this way, but it is just what you do and you adjust.

Once treatment is over, you being being able to see in increments of your scans. I think I lived 3 months by 3 months that first year. It got slightly better this past year, but even now when I think of future plans or buy concert tickets, I think of how many scans I have to "pass" before the event happens.

It was really hard for me to look ahead for a long time. It wasn't that the future scared me, but more so that I was so used to living minute by minute that I forgot what it is like to be able to look ahead.

I wonder, daily, if people expect me to have moved on by now. When I bring up something that happened while I was sick or talk about it, I do not want people to think I am doing it for sympathy or attention ('cus trust me, I am not).

What I want people to understand is that I lived minute by minute for a year. I was so in the moment that I never considered looking ahead. Now that I am at 6 month scan increments and have resumed some version of "normal", I am finally seeing the impact cancer had on my life. That I will have this experience and its side effects forever. My leg will always click. My scars are there forever. I will always remember being so sick and tired. I lost out on part of my college experience that I will never get back. Things moved on without me. My entire future will now look different than I had originally expected it to. All the things I had pictured at one point will be affected by cancer. It is now like a shadow over my life.

Cancer is a traumatic experience, especially when you are young. I think everyone would agree with that. I think I tend to brush over giving it credit for being so awful. It is easy for me to do that because it just seems like it was never made to be a big deal. From the beginning it was "we found it, we will get it, and you'll be fine". I am SO thankful for that. I wouldn't go back and change it. What I need to recognize now, though, is that my story is not any less meaningful than anyone else's. I had CANCER. And it is okay that I am not over it.

I know that other people have moved on. I get it. I really wish I could. I want you to know that while yes things are going well and I no longer look sick, what you don't see, is how long it takes me to phrase what I post. You don't see how nervous I get the day of my doctors appointments. You don't see that I struggle over what to wear to these appointments because I don't want a cute outfit to be ruined by bad news. You don't see how I second guess every facial expression of every person I come in contact with. You don't see how I start comparing scenarios in my head (at diagnosis I had just done __ or was about to __ and then compare it with where I am now). You don't see how something as simple as the weather that day or a particular smell immediately brings me back to that time. I don't actually believe this stuff, but I also can't not. I struggle so much between getting comfortable with the idea that things are okay because I don't want to just assume that and have them not be. It is SO hard. I am not sure people understand how hard scan days and the waiting period are, even still.

Cancer changed the way my world works. 2 1/2 years post diagnosis, and I feel like I am just waking up the impact it left. New things reveal themselves to me everyday and my first thought is always "that is because of cancer" or "cancer did that". It drains me to think about living like this for the rest of my life (which I am thankful to get to live and blah blah blah....what other 22 year old has to justify complaining with that?).

I am getting some good opportunities because of cancer (and also got a wave from Ed Sheeran at his concert--thank you cancer card--now if anyone can help a girl out with Harry Styles......) . I had a moment in the car the other day where it almost occurred to me that I was thankful for the experience. I quickly decided that I am still not thankful for cancer. I will never understand why this happened to me. I still wish it didn't. That, however, does not mean that I can't be okay with how I am making the best of it. I got handed a really shitty card, and I am happy to see some good come of it. I can be doing these things without being thankful for cancer.


Almost two years off treatment, and things are okay. I am slowly picking up the pieces, but there are still lots of pieces out there I am sure I will not find till later. I am slowly accepting that this is just a slow process. The expectation out there is that once you are done, you are done. It is not at all like that, and I so want people to understand that. My entire life changed forever in one minute, and it would be crazy to expect me to move on so quickly.

I am realizing now that I will never be able to look forward, without first looking back. That is just how life after cancer works, I continue to discover.

Finding Balance

Monday, May 1, 2017

I should be graduating from college on Saturday.



I am not.


This time of year brings a lot of emotions back to the surface for me. I think knowing that two years ago at this time I was starting chemo and really entering that "phase" of this road brings back a lot of memories for me. Even the weather and general "feeling" of this time of the year affect it. It is a bit less powerful than it was last year, but it is still there.

I think it doesn't help that I "should" be graduating on Saturday. I know it isn't a big deal and blah blah blah, but it still sucks. It sucks because it was something that was totally out of my control. I DID everything I could. I went to class, did my homework, made good grades. I can't really explain it, other than it is not fair and I am not all that happy about it. I am so happy and excited for my friends and I do like my school now, but it is still hard and I am mourning what should have been a little extra lately.

I am continually trying to figure out how to mold all 3 versions of myself into one semi-functioning person. I am finding this especially hard lately. I am feeling more like my pre-cancer self, but I have to balance where to put all the "stuff" that came along with cancer. I may be a "regular" person again, but I have scars, experiences, and knowledge that weren't there before (and are important). I don't want to forget about my experience, but I also do not want to only be known for being the girl who had cancer.

Cancer left me with a lot of new emotions and feelings. I have some new anxieties (I had to drive to something near the hospital a few days ago and my heart started racing just getting off the exit) and some new fears. These feelings and emotions come and go, but one emotion that has been more present lately is guilt.

A lot of you probably know (or saw on Facebook) that I hit my sideview mirror backing out of the garage a few weeks ago. I was pretty bummed about it, seeing as I am generally a careful person. We called the dealer to get an estimate, so I was prepared to spend that amount of money on it. When I took it into the dealer, they told me it was worse than they thought (is it ever not?) and they gave me a new total that was over 2x the original amount.

I cried. Right there in the Hyundai dealership, I burst into tears.

And then I hated myself for crying.

Was I seriously crying over fixing a CAR? I tried to get some perspective into my brain, but it still didn't stop the tears. People have real problems and I am crying about having to shell out a little extra to fix my car. Two years ago, I would have willingly hit my mirror on the garage just to have that be my biggest problem. I felt so bad for crying over something that is easily fixable and not a big deal at all (and although I didn't want to spend the money on the car, I did indeed have it).

People, including the lady who was helping me at the car place, told me I was not the first person to cry. That it is okay that I still cry about normal people problems. I just feel like I know better and therefore it shouldn't bother me as much.

I hate that it does, but as I was saying before, how do I balance all I know with being a regular person?? I need to be able to be who I was, but also be aware of what I know and I am finding that to be extremely difficult. I shouldn't feel guilty about these things, but I do.

Everything I do, I have an added perspective of, which is great, mostly. I am thankful and aware for the little things, but sometimes that prevents me from just being okay with being frustrated or upset. It is tough figuring out exactly where I feel comfortable.



On a more personal note, my semester just ended and I am officially done with my 3rd year of college. I was thinking about it and this was only really the second year I got to finish "officially". I now have to begin fighting my life scholarship for next year, so wish me luck with that!

Things are going well and I am preparing to have a summer that I wanted so badly two years ago. I have been in a thing lately with reading my old posts and looking at pictures. I really wish I had documented more. I think the further I get from it, the more I need to really absorb it to know that it was real and that it happened.

Other than that, I have scans again in July, and have otherwise just been keeping busy. The last few weeks of school were super intense, and I am looking forward to a relatively relaxing summer. I don't have much planned other than some nannying, hopefully some fun trips with friends, and plotting how I can meet Harry Styles. He (finally) went solo and I am DETERMINED that this is my chance to finally meet him. He's playing small venues, so at this point I'm just hoping to get tickets, but I have no shame at all about pulling out the cancer card if I need it. It is finally hot and humid here, so I am trying to figure out what to do with my hair at the length it is at in that weather. I like the length, but it isn't all the same length yet, so it is a struggle.

I guess I'll end there for now. It is crazy to look back on two years ago and compare it with now. I truly am very thankful to be here, even if some days are still hard. Please keep sweet Bella (local osteosarcoma fighter) in your thoughts and prayers as she is beginning some new immunotherapy and radiation treatments.

Thanks for all the continued love and support. It still means the world!

Cancer's Mark...Two Years Later

Wednesday, March 15, 2017

Tomorrow is two years.

Two years since I found out my subtle knee "pain" was actually cancer. Two years since I lost my normal.

That means that March 15 is the last day the last two years where I did not think about cancer at all. It will forever be the last day I had of my previous "normal".

I found my old backpack and planner a few weeks ago. It got tossed in the basement in the chaos of everything and I hadn't seen it in two years. I didn't realize the planner was still in it. I flipped through it and it made me sad. I had all the dates for the fall semester that year and all the dates for the spring semester that I never finished. Most haunting of all though, was where I had written "doctors appointment 8:15". Never in a million years would I have ever thought that appointment would hold as much weight as it does now.

I wasn't as anxious about the approaching date this year. Am I thrilled to see that date on the calendar? Not really, but compared to last year at this time, I am in a much better place. I know it is important to mark the day somehow, but part of me kind of just wants to ignore it this year.

I think it is because I have settled in a bit to this "new" normal. While it is not where I expected to be, I am happy. I like my school and my job. I have a routine and my days are busy. I honestly have less time to focus on the date this year.

I know I kind of let on to it, but last year was an extremely hard year for me. Coming off of treatment and just feeling in "transition" for a year was not easy. I struggled a lot with a lot of things. It wasn't until my scans last October (my doctor called those my 1 year scans) that I really felt some of my "old" normal return. For some reason, it does a lot for me mentally to be able to put this experience in years rather than months. I almost did not realize how hard last year was until this year started.

I am so thankful to be where I am two years post diagnosis. I am on no medications, my scans from February were clean and if my August scans are clean I will get to go to 6 month increments, my hair finally feels like hair again (although I am waiting for the day I can put it ALL in a ponytail), I am back to basically full leg function, I could keep going but you get it. Back when this first started my mom said that everyday that gets further from D-Day will get better. I am so thankful I have found that to be true.

With my last set of scans, I wasn't as anxious as I was annoyed to get back into that mode. I do not live in cancer mode anymore so having to go back there is annoying. I have to figure out how to schedule scans in between my already insane schedule. It is just very inconvenient now, and I am jealous that not everyone has to deal with this.

All that said, I want to emphasize that cancer is not gone from my life.

I may not be thinking about it as much as I once did, but it does cross my mind everyday. It literally altered the course of my life. I know for a fact if it had not happened, I would still be at USC and I would be graduating in May. I am where I am because of cancer. I am slowly coming to accept that (not easily).

I still have pain in my leg. If I sit with it bent too long, it hurts to straighten it. It "clicks" when I bend it back and forth or walk up the stairs. I do not say this to sound ungrateful, but it is not a "normal" leg. I am so thankful to be able to function regularly and that it wasn't worse, but sometimes it is still annoying. I am not sure if these things will continue to get better or if it is what it is at this point. The skin to the left of my scar is numb (so my lower thigh). Not a big deal, but it is still a mark cancer left.

I have not talked much about this (I did post it on my FB page a few weeks ago with scan results), but I have noticed some things about my hearing this past year. At first I didn't think much of it, but once I got back to school and work I noticed it more consistently. It wasn't affecting my daily life or regular conversations, but it was still something I picked up on. I noticed that I could sometimes hear people, but couldn't understand what they were saying. I get really frustrated when the TV is on and people are talking. Phone conversations can be difficult and sometimes things just don't sound as clear to me as they once did.

I brought up these concerns to my oncologist at our last appointment and he referred me to an audiologist. He said he didn't think I received enough to have major damage, but it was still worth checking out.

I went to the audiologist this afternoon and had a hearing test, and while the results are far from awful, cancer left its mark there too.

I have high frequency hearing loss. She said this is very common with patients who received Cisplatin (a kind of chemo I got). She said this is why I was experiencing all those things I mentioned above. I am far from needing hear aids and I am normal in every other range, but there is quite a drop in my high frequency. She said she has seen worse so I shouldn't worry, but I will have annual appointments for the next couple of years.

I am glad I wasn't going crazy and there is a justified reason for it, but it was still kind of sad to hear. I know that this is hardly a major problem and I am so thankful it is not worse, but it still kind of sucks. I mentioned that I work with kids a lot and sometimes I have to ask them to repeat themselves and she said that makes sense as kids can fall into that high frequency range where I struggle. I spend a ton of time with kids and am going to be a teacher so that kind of sucked to hear, if I am being honest.

So totally not the end of the world, and in the scheme of life it is nothing, but it is just another thing that cancer caused. Cancer doesn't just end when treatment does...I will be dealing with these side effects for the rest of my life.

Not to end on an unhappy note, I will just say thank you so much for the all the love and support these last two years. Part of me cannot believe it has been two years and another part of me cannot believe it happened at all! I am so thankful tomorrow will be March 16, 2017. I am hoping for a good day! Throw a little kindness into the world tomorrow...you never know who might need it.

I want to share two things I wrote for Teen Cancer America that they shared. The first one was back in November/December and the second one was the beginning of February. I hope you will read, share, and support TCA however you can! They are truly doing awesome things.

https://www.teencanceramerica.org/on-being-thankful/

https://www.teencanceramerica.org/the-lost-year/ (this is one of my favorite things I ever wrote)

We live among everyday heroes. Men and women who have seen real combat, horrific tragedy and the battle often comes home with them.:

Inspiring Quotes for Cancer Patients,:



Permission

Thursday, October 27, 2016

Life after cancer is weird. I have been trying to figure out the best way to explain why, and I think I have some idea now.

Before cancer, I had total control of my life (or as much as any regular person does). During cancer, I have 0 control over my life. I was told where to be and when to be there. I had to wait to see if my counts were good enough so I could go out. Now, in this life after cancer, I am back to having control, mostly. I have control in the month in between my scans. As scan time gets closer, I start to feel like I am losing control again. I have to wait to hear from my doctor to see if I will be "allowed" to continue to live like I have gotten used to. It could all change just by him walking into the room. It is a terrifying feeling, one I am not sure ever gets easier. 

After we leave the doctor on these scan result days my immediate thoughts are "my hair gets to continue to grow!" and " I get to go back to school next week" (no Friday classes over here!). I think of all the things that I "get" to do in the months ahead without cancer interfering. Sure these things are mostly things people do everyday, but I feel like clear scans=permission to live my life. 

For some reason, I felt like these scans were a big deal. Technically I won't be one year off treatment till December, but my doctor counted these scans as my one year scans. One year cancer free is a HUGE deal. I remember the Nurse Coordinator (or something like that) visiting me in the hospital last November saying that next year at this time I would be celebrating being a year done. It is crazy that that year has passed and here we are. I don't know how, but I am thankful. 

It is also kinda crazy that one year cancer free is such a big deal. I lived 19 years without cancer, so why is it such a big deal now to live one year without it? I am asking rhetorically, as I know why, it is just such a strange thing. I could trust my body for 19 years, why can't I trust it for more than 3 months now (I swear thing hurt more around scan time). 

The circumstances surrounding these scans was a little too familiar as well. I just submitted my application to the professional program yesterday. I had submitted my application in March of 2015 right before I was diagnosed. It is now another thing I (finally) get to do....I get to go to school next semester. We are at the halfway point of this semester....I was at the halfway point when I was originally diagnosed. I am so thankful to get to finish out the semester.

My next scans will be in February. He increased the increment to four months! Technically, the protocol is move to 6 months after the first year, but for peace of my mind he decided to try four. I think it was mainly for my mom :) because he said he would have been fine with 6 and I would have been too! The more space between scans=the more I am "allowed" to do things as normal. Hopefully we can go to 6 months from there!

I am fully aware that not everyone has positive experiences at their oncologists. My doctor walked in the room smiling and gave me a hug. He told me he would pull up my scan, but there was no reason to because it "is a perfectly normal CT scan". He told us to celebrate. Cancer is a monster and I think about those still fighting daily. I hope you will too.

I know my last post seemed kind of negative, but these last few days I have felt like things are good again. I feel like my independence is coming back and I am remembering who I used to be. While I will never be that person again, bits and pieces are coming back. There have been times I wondered if that would happen. I feel like I am once again excited about looking to the future. I don't know what changed, but I am happy to find myself slowly coming back. It took almost a year, but I think I am finding a new "normal". I just pray that I get to keep it. 

Thank for all the love and support through the good and the bad. I am hopeful that there is lots more good to come!






 
The most beautiful words in the English language. I am not sure I will ever be happier than when I find out my scans are clean (sorry future husband and any future children). Truly there is no greater feeling!

 

 

Some Thoughts on Life After Cancer

Friday, October 7, 2016

- I may be nine months off treatment but I still think about cancer every.single.day. Everytime something hurts or just randomly throughout the day. My hair is still short and I have scars in noticeable places. Literally not one day has gone by that cancer has not crossed my mind. I would honestly say not even an hour goes by without me thinking about it. 

-I am still bitter about school. I am very thankful to be back this year, but I think part of me will always long for what "should" have been. Sometimes I really do get angry about the situation. It hurt to see all my friends post their "last first day ever" pictures. That should have been me too. I know I did the right thing by transferring, but dang it still sucks that I had to. Walking around my new campus is nice, but it makes me miss my old campus and the life I had there.  Everytime people ask what year I am (which is a lot more often than you would think)  and I have to reply junior, I get mad. I want to say junior, but I should be a senior, but that involves getting into the whole story. Which brings me to my next thought...

-What do I tell people??? Cancer is kind of a big bomb to drop in a conversation. I don't want people to feel bad for me or think I am doing it for sympathy. I don't want to totally ruin a conversation by bringing it up. What does one do? I try to follow the flow of the conversation but sometimes I still feel awkward bringing it up or bad if I don't. It all still seems so new to me that I feel like I want people to know. The people I have told responded well (and it is nice to finally have an interesting fact about myself to share on the first day), but it is still hard to know how/when to say it.

-On the topic of things that are hard to say, I still struggle with saying "I had cancer". You would think 18 months later that I would be able to say it, but the words still do not come naturally to me. I still cannot believe that this happened to me. I had cancer. How did that happen? How did I get through what was once my worst nightmare? I lost my hair and had chemo and spent 9 months in bed. It is truly unbelievable.

-I still miss my old life. A lot. I often think about what I would be doing now if I hadn't gotten cancer. Sometimes I forget that I was away at school for the time I was. I forget that I had an indepedent life at one point. I was thinking the other night that this has been the longest I have gone without seeing my brother (he's at Clemson now!), but then I remembered that not that long ago I was at school! Things are just so different now. I got so immersed in "cancer life" that I feel like it wiped out everything else. Things almost seem so "normal" now that when I realize where I am and how I got there I get sad. It just is so not what I thought my life would look like at this point. 

-Cancer changes things. Some for good, some for bad. As much as I don't like to admit it, things are different. My friendships are different, the way I do things is different. I tried for some time to just pretend like cancer never happened, but it is impossible. I spent 9 months in hibernation, but everyone else was out living and accomplishing things. I did not go back into the world I left on March 16, 2015. I have a new anxiety about schedules. I get seriously anxious when things come up that interfere with how I thought the weekend would look or things that interupt my usual schedule. I am doing my best to overcome this and not say no to things just because I didn't plan for it, but it is HARD, friends! I didn't have this before. You would think that considering how unplanned the last year was this would not be an issue, but that is not the case. I am hopeful that this will go away since it is fairly new. 

-Senses are POWERFUL things. I still get whiffs of the hospital, even just walking around or sitting in class. Literally while sitting in the lobby of the building my class is in (where I starting typing) this I started to smell the scent of the outpatient chemo room. I had a white cotton blanket on my bed and had to have my mom change it because it reminded me too much of the hospital blankets. The change of the season is not helping at all either. My memories of this time last year are so vivid that it is almost scary. I know the holidays scents and decorations are going to get to me. The feeling of the weather...the cooler temperatures (which I am hopeful are coming) and the cloudiness of the sky all bring me back to last year at this time. I have been told this gets better the further away you get from everything...I think it is also just my way of processing all this.

- I wish I had documented more. I wish I had taken more pictures and spent more time documenting my day-to-day events. I go through times where I just want to look at pictures and read posts to make my experience feel real and like it actually happened. I think I still am in such disbelief that this happened so I need to posts and pictures to prove it to myself. I am happy to have what I have, but I wish I had more. 

-I am thankful everyday that things are the way they are. So beyond thankful. That being said, I get angry because I feel like I shouldn't have to be thankful for some of those things. I was reading something a few weeks ago (I wish I could remember what) but it inspired this feeling. Why should I have to be thankful to be in back in school? I am 21...college is almost a given. Why do I need to feel thankful for things that everyone else just assumes will be there? Why did this happen to me?? Why did I get torn from my college experience and all that comes with that? I know what it is like to have terrible mouth sores, so I am thankful everytime I can eat something (sometimes I still expect my mouth to hurt when I eat). I know what it is like to not have hair, so I am thankful for clear scans because that means my hair can continue to grow. I know what it is like to not be able to walk and to be in in constant pain so I am thankful everytime I can walk to my car and drive somewhere. I am happy I can truly appreciate the small stuff now...but why should I have to? 

-Sometimes I just want to scream that I HAD CANCER and although I look fine on the outside, I AM NOT OKAY on the inside. In a way, it was almost easier when I looked sick because people just assumed you weren't okay. It is harder now that my weight is back to normal, I have hair, and my port is out (all the praise hands for that). Looking healthy is not a bad things at all, but I have a lot of emotional baggage I am still processing. Some days I just want to stay in bed at home where I am comfortable. Then I immediately tell the universe that I don't really wanna stay in bed because last time I got to spend days in bed it was because of cancer.

-Short hair is not fun. Better than no hair? Of course. Easy to manage? No! I am struggling. I LONG for the days of a ponytail. I have dreams of having long hair. I just want to be able to put it back into a ponytail. I'm tired of fixing my hair in the morning (but completely rewetting it) and not knowing how it will dry till the afternoon. Sounds like a dumb complaint, but let me have my moment.

-How come people in movies who have cancer always die? Are they any movies where people survive? I know there is a stigma with the word cancer, but jeez. People do die of cancer it is true...but why is that all we are slammed with? Lots of people survive.

-Surviving doesn't mean struggling is over. It is just now on top of normal life stresses, I get to stress about scans and fitting in physical therapy and figuring out all kinds of new things. It just added another layer of stress to everything normal people stress about.

-Did I mention I am bitter about school? 'Cus I am. I am so happy for my friends who are posting countdowns and their "lasts" but I get so angry that is not me. Why am I just now figuring out student teaching when all my friends are looking for jobs? That is NOT the way it was supposed to go. It sucks and it is unfair. 

-I have developed a weird kind of nostalgia. It is weird and I am not sure I can put it into words. It is not AT ALL that I wanna go back to last year at this time, but I also like can't believe that time is over and I made it. It is hard to describe...I think having literally NOTHING to do and getting back into life as a normal person contributes to it. I wish I could phrase this better. I'll keep trying.

-Sometimes it is hard for me to tell what are normal changes that happen when you are in your 20s and changes that have happened because of cancer. Certain things that have happened leave me wondering if it would have been this way had March 16, 2015 not happened. This is just such an important and transformative time and it sucks that this new thing got thrown into the mix. 


There ya go...an inside peek into some of my brain recently. I know things will get better as time goes on. It is just all this learning and readjusting is a lot more intense than I could have expected. I promise to write some more as I find I do feel better when I let stuff out...and I promise more of an update will come soon!

Thank you again for all the love and support...it means so much and still does. 




Others

Saturday, July 9, 2016

I usually stay away from discussing current events on this blog, mainly because that was not the point of it. I still aim to keep it that way, but given the recent events and journey back into the regular world, I feel like I can make this work. 

A few months ago, Humans of New York did a several week series sharing the photos of children and their families at Sloan Kettering battling cancer. I obviously followed along and each story tugged on my heart. If you haven't seen it, I would definitely encourage you to go back and read each post. 

Anyway, one of the doctors was quoted saying something that has stuck with me. It was something I have tried to put into words, but just could not figure out how. The quote is:
              "Cancer engenders immediate fear. I think that deep in our soul, we don't want to admit to the possibility that we might have it too. So when someone else gets cancer, we turn that person into an "other". It that person is "other than us", then maybe it won't happen to us. For the past thirty years, I've done everything I can to keep children from feeling like an "other". Yes, this child has cancer. But this child is a normal kid..." 

He keeps going, but you get the gist. While I personally can relate to exactly what he is saying, I think that the word cancer could be replaced with many other circumstances as well. We all read and see stuff in the news everyday, and I know I am guilty of making those people "others". I feel like it is an automatic reaction to seeing disturbing things. No one wants to admit the truth...that those people aren't really "others". The sad fact is, we are all people and what hurts one could hurt any of us. 

While the exact circumstances of the recent events do not necessarily effect me directly, just as cancer may not effect you, there are people who it does. It is easy for us to turn those people into "others" because we can say well, I am not a cop or I am not black, or I am not Muslim, or I don't go to parties or I don't live in an unsafe area or I am not gay or...I could keep going, but do you get my point? We all make other people "others", but those others we create are also doing the same thing to us. 

I think my recent experience with cancer changed my view on "others". I now know that anything can happen to anyone. I was not an "other". Those people in Orlando or in Bangledesh or in Turkey were not "others". Those cops in Dallas or the recent victims of police brutality were not "others" either. I feel like I can better put myself in people's shoes. All those people had families and friends and a whole life that we do not even know about. Obviously I am not saying I understand completely what they are going through (I can't even pretend that I know what other cancer patients are going through), but I do feel like I have more empathy for them. All those people in the tragedies in the news recently could have been me. They could have been you, too. 

I am not saying that this is the answer, but I really think if we stayed away from categorizing people as "others" then we would all see things differently. We may be different and lead different lifestyles, but in the end we are all people. All people deserve to be respected and loved, and all death is to be mourned. One of my favorite quotes from My Big Fat Greek Wedding is at the end when the dad is giving the speech and he says"
    "You know, the root of the word Miller is a Greek word. Miller one from the Greek word "milo", which is mean "Apple", so there you go. As many of you know, our name, Portokalos, is come from the Greek worked "Portokali", which mean "orange". So, okay? Here tonight, we have, ah, Apple and orange. We all different, but in the end, we all fruit". 
(Bonus points if you read that in his voice)

People are people and while we do not like to admit it, there really is no such thing as an "other". It is a trick we play on ourselves. Some people have been slammed recently with this truth. It is very hard to come to terms with the fact that any one of us could find in ourselves with cancer or in a shooting or in some kind of trouble. I am not saying to walk around in fear, but the world needs more empathy. We see it directly after times of trouble, but what about the rest of the time? We all need to care about one another as we care for our own family and friends. No one is that much of an "other" that they do not deserve the same love and respect. 

I will end this post by saying my intention of posting was just to share some thoughts going on in my head. Not to start controversy or a conversation about politics. I am sincerely praying for all the victims of recent events and for better days ahead for everyone.