Before cancer, I had total control of my life (or as much as any regular person does). During cancer, I have 0 control over my life. I was told where to be and when to be there. I had to wait to see if my counts were good enough so I could go out. Now, in this life after cancer, I am back to having control, mostly. I have control in the month in between my scans. As scan time gets closer, I start to feel like I am losing control again. I have to wait to hear from my doctor to see if I will be "allowed" to continue to live like I have gotten used to. It could all change just by him walking into the room. It is a terrifying feeling, one I am not sure ever gets easier.
After we leave the doctor on these scan result days my immediate thoughts are "my hair gets to continue to grow!" and " I get to go back to school next week" (no Friday classes over here!). I think of all the things that I "get" to do in the months ahead without cancer interfering. Sure these things are mostly things people do everyday, but I feel like clear scans=permission to live my life.
For some reason, I felt like these scans were a big deal. Technically I won't be one year off treatment till December, but my doctor counted these scans as my one year scans. One year cancer free is a HUGE deal. I remember the Nurse Coordinator (or something like that) visiting me in the hospital last November saying that next year at this time I would be celebrating being a year done. It is crazy that that year has passed and here we are. I don't know how, but I am thankful.
It is also kinda crazy that one year cancer free is such a big deal. I lived 19 years without cancer, so why is it such a big deal now to live one year without it? I am asking rhetorically, as I know why, it is just such a strange thing. I could trust my body for 19 years, why can't I trust it for more than 3 months now (I swear thing hurt more around scan time).
The circumstances surrounding these scans was a little too familiar as well. I just submitted my application to the professional program yesterday. I had submitted my application in March of 2015 right before I was diagnosed. It is now another thing I (finally) get to do....I get to go to school next semester. We are at the halfway point of this semester....I was at the halfway point when I was originally diagnosed. I am so thankful to get to finish out the semester.
My next scans will be in February. He increased the increment to four months! Technically, the protocol is move to 6 months after the first year, but for peace of my mind he decided to try four. I think it was mainly for my mom :) because he said he would have been fine with 6 and I would have been too! The more space between scans=the more I am "allowed" to do things as normal. Hopefully we can go to 6 months from there!
I am fully aware that not everyone has positive experiences at their oncologists. My doctor walked in the room smiling and gave me a hug. He told me he would pull up my scan, but there was no reason to because it "is a perfectly normal CT scan". He told us to celebrate. Cancer is a monster and I think about those still fighting daily. I hope you will too.
I know my last post seemed kind of negative, but these last few days I have felt like things are good again. I feel like my independence is coming back and I am remembering who I used to be. While I will never be that person again, bits and pieces are coming back. There have been times I wondered if that would happen. I feel like I am once again excited about looking to the future. I don't know what changed, but I am happy to find myself slowly coming back. It took almost a year, but I think I am finding a new "normal". I just pray that I get to keep it.
Thank for all the love and support through the good and the bad. I am hopeful that there is lots more good to come!
The most beautiful words in the English language. I am not sure I will ever be happier than when I find out my scans are clean (sorry future husband and any future children). Truly there is no greater feeling!